Earlier today I came accross a short video of Nick Jonas talking about his role of National Chairperson for the JDRF walk.https://www.facebook.com/l.php?u=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DOqwiAi5awlc%26feature%3Dfeedrec_grec_index&h=14521
So his song a little bit longer has been going through my head. A little bit longer. I hope that is all we have to wait for a cure for this stupid disease. I say stupid because it is. Just ask those moms who have lost children to it, some even recently. Just ask the 2 moms i was chatting with earlier; one dealing with really low blood sugars, the other dealing with really high blood sugars. Just ask me. Every day truly is a winding road and no 2 days are the same when you are dealing with type 1 diabetes, no matter how hard you work to make them the same. Some of us have given this disease nicknames such as "randombetes" (because sometimes the blood sugars can seem so random despite doing everything the same) or "stupidbetes" because as I have just said it is stupid.
Yes, we have insulin. Yes, I am eternally grateful for it and to Banting and Best for their discovery. But let's face it. It is not a cure. As I start to think about planning for our JDRF walk (which we hold here in September), I have been thinking I should write something on how insulin is not a cure. Today I came accross another mom's blog which is about this very subject. I don't think I could say what she has said any better, so I will just direct you to what is already written:
http://betabuddies.blogspot.com/2011/05/not-even-close.html#comment-form
I would like to add one thing as this mom talks about all the needles. We are on a pump. Yes, we have less needles. Yes, there are advantages. But this too, is not a cure. The pump does not regulate things the way an artificial pancreas one day will. It is not magic. It is another method of giving insulin. And in some ways it is more work as you really do have to stay on top of things.
But hopefully with some more research and support we will only need his pump a little bit longer....
I put the part about the pump in because after we switched to the pump I had people who were surprised I was still needing to check his sugars or work to manage his D. I think they thought it was like an artificial pancreas, so I just wanted to clarify. thanks.
ReplyDeleteWell said T, I love Beta Buddies too. Love reading your blogs. xo
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